Families Are Forever

Summer 2003

Our first family photo with Benjamin
Mom and Kayla with Ben
Daddy and his boy

Kayla loves her brother

Summer Surgeries 2003

Summer of 2003, Ben had two major surgeries. The first one was performed in June by a pediatric surgeon, Dr. Latchaw. The name of the surgery was a "Fundoplication" or Nissan wrap. This is where they take the top of your stomach and wrap it tightly around your esophagus so that the food in your stomach won't "reflux" or travel back up the esophagus into your mouth. This surgery was done to prevent Ben from aspirating food into his lungs. He stayed 8 days in the PICU at Dartmouth and recovered quite nicely from the surgery. The only drawback was that his swallowing capabilities were changed and so when his secretions would pool in the back of the throat he would start coughing, choking and turning blue. We tried so hard to fix this problem but in the end, the only thing that helped was to have a "Tracheotomy" done.

Dad seeing Ben right after his trach surgery
Sleepin peacefully after surgery
Ben's fundoplication surgery

First Birthday

April 2003 was such a milestone for us. I just kept thinking that if we could make it to his first birthday that everything from there on out would be okay. Well, Steve and I planned this really big party with all our friends and family that have been so monumental in our lives and wouldn't you know that the night before his big day Ben catches RSV. I remember not having such a great feeling the night before because his oxygen levels were slowly dropping and by morning they were around 83%. I packed our bags and headed to the local ER where they then prepared to have us transported to Dartmouth by the DHART team. This was Ben's second go around with RSV and it was worse than the first time. We spent a total of 11 days in the PICU that time and it was eerily similar to exactly a year before when he was born. We spent the same exact days in the ICN there, the 5th through the 15th of April two years in a row.

Ben was only happy in my lap.
Ben's sats were so low they had to use a face mask and nasal cannula to get him the oxygen that he needed.
Ben got lots of neb treatments during his stay.
Poor baby was so sick.
This is mostly how he looked, he was really sick and uncomfortable. I never left his side.

Benjamin's First Year

Kaleb holding Ben at Dartmouth. He had viral pneumonia and was in for 10 days.
Working the binkie with the oxygen mask.
Ben sporting his Nike outfit.
First thumb splints - they were a little big.
This boy loved his baths. They would calm him when he cried.

Another stay at Dartmouth for viral pneumonia. This one lasted 8 days.
"Look Mom, NO HANDS!":)
Attempting a smile...
Mimi made me this hat to keep my head from burning in the sun.

Family Reunion 2002

This is me when I was only 5 months old. I'm not very happy in this picture.
My Uncle Zach and I sharing a moment together.
My very large extended family from my mom's side. Can you see me all the way in the back on the left side?

Spirit To Spirit

SPIRIT TO SPIRIT
by Kenneth G. Hutchins
**********

Softness in the air heralds reverence for life newly come;
Tangible quiet surrounds a hundred tiny breaths of one,
Who hears whispers from the heart of his Mom.
Tender beeps from machines full of a life of their own
Reassure parent's of fragile life, so recently sown,
Who hears whispers from the heart of his Mom.
And angels come, to shelter him, with healing in their wings.
Heaven sent, to shepard and perserve him for all the things
That whispering comes from the heart of his Mom.
This is a sacred place, where life clings to slender threads,
Connecting us all to Heavenly homes and dreams unsaid,
That whispering comes from the heart of his Mom.
And heartfelt prayers welcome each moment in time,
That life's gift stays with him and become more refined,
By whisperings returned to the heart of his Mom.
**********

Kenneth G. Hutchins - April 8, 2002
(Benjamin Orton's maternal grandfather)
**********

(This poem was written while sitting in the Newborn Intensive Care Unit. The newborn son of my daughter Becky had been taken there shortly after his birth due to life threatening conditions that we may never fully understand. It was such a privelage to witness the extraordinary levels of competent, compassionate care given by the nurses of this unit. They are the angels spoken of in this poem. The poem itself speaks to the spiritual communication that takes place between a mother and her child. We onlookers cannot see it, hear it or perhaps even understand how it happens - but I know it does. Heart to heart. Whatever may become of little Benjamin, his mother will always know his voice.)

Welcome to Earth

Benjamin McKay Orton was born on April 4th, 2004. After about an hour or so after he was delivered, the pediatrician at the Laconia Hospital in NH noticed that Benjamin's head was small. He was also having myoclonic jerking and/0r seizures. He became very concerned for Ben's wellbeing and shipped him to Dartmouth so that they could better care for him. Steve went with him and I had to stay behind until I was stable enough to travel. My mom drove me up the next morning and this is the first time I got to see Ben. It was an overwhelming site. He was intubated, hooked up to an EEG (looking for seizure activity), IV's, heart monitor, blood pressure cuff and some other tubes and wires.

We were told that Benjamin would never come off the vent and he probably wouldn't live and so we had to prepare ourselves and children for that. After the 3rd day on the vent, Ben started breathing above it and was able to convince the dr.'s that he wanted to stick around for a little while.
Since we couldn't really dress Ben, we amused ourselves with many different hats. My favorite was the pumpkin one seen above.
It was such an emotional rollercoaster, those 11 days. My family and Steve's parent's were able to come and witness his father give him a name and a blessing. At that time we didn't think he would live and so they all flew in from all over the country. We were so grateful to be surrounded by such love and support.
When we took home Ben, we also took home a pulse oximeter to measure his blood oxygen levels, oxygen, a suction machine, and many other forms of equipment needed to take care of him. We were elated to bring home the 6th member of our family. He's been growing on love ever since.