We made it back. It was an adventure. Snow squall, crew change in Manchester, car sickness, apnea and heart issues. HOW? I keep asking myself. How do I end up in these situations? How many other chronically ill children PICU hop the way that we do? It's CRAZY!!! It's exhausting and stressful. But I'm always happy to land back on our home turf. Ben has been lethargic for 24 hours now. Not typically like him. Ever since he spiked his fever last night he's been dead to the world.
Picture above is at Mass General in Boston....
the last time he was awake.
Below is Ben at his home away from home.
He's tucked in for the night.
We'll see what tomorrow brings.
I'm plum tuckered out.
See you in the morning.