If you had asked me in the beginning of this illness that we would STILL be in the PICU - I would have told you that you were CRAZY! I had no idea how long it has been until rounds this morning with the doctor and team. Someone mentioned that this was Ben's 17th hospital day and most of us in the room gasped in surprise. Has it really been that long? And 17 days is THIS hospital stay. The last one was 26 days long. We still have a couple more days here. Ben has been weaned down to minimal settings and right now they have him completely on C-PAP, still on the vent, but it's just C-PAP. That's a good move towards getting off the vent. They will put him back on Pressure Support tonight and then tomorrow at 6am they will take away the pressure support, leaving him on C-PAP again. Hopefully by rounds (around 10am) they'll put him on trach collar. It he does well on his trach collar for 24 hours, we'll be able to leave. He's off all of his antibiotics as of Monday and he looks more like the healthy Ben. Stevie is with us for the remainder of our stay since this is her vacation week. It will feel SO good to be back together again this coming weekend. We can't WAIT!Thursday, April 30, 2009
17 days later....
If you had asked me in the beginning of this illness that we would STILL be in the PICU - I would have told you that you were CRAZY! I had no idea how long it has been until rounds this morning with the doctor and team. Someone mentioned that this was Ben's 17th hospital day and most of us in the room gasped in surprise. Has it really been that long? And 17 days is THIS hospital stay. The last one was 26 days long. We still have a couple more days here. Ben has been weaned down to minimal settings and right now they have him completely on C-PAP, still on the vent, but it's just C-PAP. That's a good move towards getting off the vent. They will put him back on Pressure Support tonight and then tomorrow at 6am they will take away the pressure support, leaving him on C-PAP again. Hopefully by rounds (around 10am) they'll put him on trach collar. It he does well on his trach collar for 24 hours, we'll be able to leave. He's off all of his antibiotics as of Monday and he looks more like the healthy Ben. Stevie is with us for the remainder of our stay since this is her vacation week. It will feel SO good to be back together again this coming weekend. We can't WAIT!
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9 comments:
Oh gosh, I hope you get out of there soon. Its been since October that we've been in for a long time. 23 days. I don't miss it at all. LOL.
I am sure you will be ready to get home....hopefully sooner rather than later...(probably too late to say that, now.) Glad you can have Stevie with you....
Keep working hard Ben! You can do it buddy! We love you!
Big prayers that you can come home very soon. Hugs
Love you Becky and Ben. Good luck on the vent weaning. I hope you can get out of there, get home and have a wonderful Mother's Day healthy and happy.
Praying for you and Ben! Hoping you can get home to the rest of your family very soon!
Hopefully you both can return home soon.
Hope you can get home this weekend. So sorry that this has been such a long hospitalization for you, dear Benji. We're all praying for you. Lots of love to everyone. Aunt Shirley and Uncle David
You're both looking a little chalky - need some sun! Run home, quick!
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