Saturday, March 20, 2010

BENNY BOO

I love Ben's baby legs.  The nurses get a kick out of them too.  Look how skinny those legs are.  Cute Ben.  Today they added a second antibiotic for double coverage until his sensitivities come back.  His x-ray from yesterday looked just a smidge better than the first day so the rate on the vent seems to help keep his lung a little more open.  Because he has his PICC line in and he's stable, we are thinking Monday might be the day to go home. :)  This would make our shortest PICU stay in over two years.  Hurray for that.  Makes me so thankful to walk out of this place once again as I know some are not as fortunate.  Two doors down lies a little 1yr. old down syndrom boy named Gabe.  He was just diagnosed with Leukemia.  He already has pulmonary hypotension and is vent dependent.  After his third round of chemo he became really, really sick.  Wednesday I visited him as he played with a little toy.  Even as sick as he was...he was his happy, amazing self.  He was working so hard to breathe despite the pneumonia growing in his body.  The vent wasn't enough to support his efforts and so they now have him sedated, on an oscillator vent, he's got 13 pumps surrounding his little bed for sedation, antibiotics, TPN, blood pressure meds and fluid.  Because he has no immune system his body's temp continues to hover around 105.  They now have him on a cooling blanket because his body isn't absorbing the tyelnol anymore.  Please pray that his little body will start to make the white blood cells that he so desperately needs and that his body can start to fight the infection raging within.  Life is so fragile.

11 comments:

Erin said...

Becky and Ben, I haven't been online in a few days and didn't know you were back in again! Hopefully this will be the shortest stay. Thanks for your love and thoughts, coming right back at ya!

Junior said...

Prayers for little Gabe.
We will be praying that youguys can get out of there on Monday. Ben you look so cute in your babylegs.

ANewKindOfPerfect said...

Ben I hope you do get to go home on Monday! That would be great news. You look great in your baby legs. :)

LL said...

I always thought the Farmer had the best legs in the USA. I think Ben is his competition :)
Love it.
Sweet little Gabe, I can't imagine.

April said...

Love those legs!!! We are sending our prayers to you and to your sweet neighbor a few doors down...:(

Lacey said...

I'm glad home is hopefully in the near future. And remember, I would love for you to give that mommy my email address.

Zion And Missy said...

Benny boy. We love you and hope you get better soon. Aiden and Tia are blowing their kisses to you! Life is very fragile, and we will continue to pray for you and Gabe.

Jo Jo said...

The nurses love his skinny legs because you always make them look so fashionable! Poor Gabe. With that name, and his downs, he's a sure heart clencher.

The VW's said...

Praying you get to go home on Monday! Glad you are on your way to getting better! Keep fighting Ben!!! You are such a fighter and quite handsome too!

I'm so sorry to hear about your friend Gabe! This breaks my heart! I'll be praying! Love and Hugs!!!

Jenny said...

How can you make us laugh and then cry in the same post? SAD. Kisses for Ben, Prayers for Gabe.
Life is so short.
xo

shirlgirl said...

You certainly see many little ones less fortunate than Ben--he is such a fighter. Hope he feels better soon and that you'll be coming home on Monday. Prayers for little Gabe. He certainly has lots of medical issues. Hope he can fight the leukemia. So sad at such a young age.