Dartmouth Day
We're feeling mighty light today. NOTICE anything? Or should I say the LACK of a somethin' somethin'? Ben's off his vent. We took him off last night and so far so good. I was happy not to lug it to Dartmouth and we even stopped by the PICU to brag about it. I'm keeping him covered up because we certainly do NOT want to bring any extra friends home with us. They even gave us a pager at his doctor appointment so that we could go somewhere secluded and NOT be around the general public. That was very considerate of them. So as I type, we are waiting for the page to head down for his appointment. He's seeing his orthopedist today. I don't anticipate any big changes for him. He is however, due for full body x-rays to see how things are growing/changing. I'm worried about his left arm still, the one that is chronically swollen due to his chronic dislocation in his elbow. I'll update if there is anything new. 
Off we go! :)
We're feeling mighty light today. NOTICE anything? Or should I say the LACK of a somethin' somethin'? Ben's off his vent. We took him off last night and so far so good. I was happy not to lug it to Dartmouth and we even stopped by the PICU to brag about it. I'm keeping him covered up because we certainly do NOT want to bring any extra friends home with us. They even gave us a pager at his doctor appointment so that we could go somewhere secluded and NOT be around the general public. That was very considerate of them. So as I type, we are waiting for the page to head down for his appointment. He's seeing his orthopedist today. I don't anticipate any big changes for him. He is however, due for full body x-rays to see how things are growing/changing. I'm worried about his left arm still, the one that is chronically swollen due to his chronic dislocation in his elbow. I'll update if there is anything new. 
Off we go! :) 
14 comments:
YAY for being off the vent!!! Hope your appointment went well! Good thinking with the mask! HUGS!
Yeah for no vent. How nice not to have to lug that thing around.
His eyes are beautiful. So glad that he is doing well.
Good Luck Momma! I hope the appointment went well. Love ya
I am SO TICKLED that he's off the vent! YAHOOOOOOO!! He looks so cute all masked up!
yaaaahoooooo, way to go Ben, love hearing that you are off the vent.
good news with the vent, that really is exciting!!
That little somethin' somethin'... YOU are a little somethin' somethin'!! Great news!
xo
Aiden loves seeing Ben's blog. Thanks for keeping it updated. Aiden says he wants a mask like, Ben. Maybe they can wear it to church on the same day! :) This letter is to Ben from Aiden: osussyzhwquyhcxudsygcds ygcsbuydhagagdsjebi yswytsgetr3q56tvfgrfhrwtrf ggdfgytgfhdeef gxdg fhyydfyeryudstdyrfetfry rdher3rjfgrjfyrgygdeyhdehdejdjhejfhj gggvfh g
Translation:
Ben. Ben. Ben. Ben. Bens. I am glad you are feeling better. Your mask is pretty cool. I want one like that. I like daddy. I am going to go to the park today with mommy and Tia. I hope you have a good day at the hospital today. See you at church on Sunday!!!!! Love, Aiden Tilley
This is amazing news! Free at last :)
I'm so glad you were able to have the place to yourself. Whenever I go to appointments and waiting rooms, I feel like we're in a flu/cold petri dish!
Have a great day and definitely DON'T bring any "friends" home with you!
Glad he is off the vent--hope it can stay that way and hope he had good reports at Dartmouth today. Love you Benji.
Yea Ben! That's great you got to take some time off from your vent. You are so strong-like your mom.
Loving the MASK look! Great, great news.
You are the best
www.rosadesain.blogspot.com
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