Wondering if Ben's face looks swollen. It's hard for me to tell as much because I'm with him all the time. The visiting nurse was here today to change his PICC dressing and she seems to think that he looks a little bloated. (his belly looks pretty big too) Wondering what my friends in cyberspace think? His hands are still not good. I'm thinking that it might be a fungal type of problem. We have a nystatin powder on board now and I am really trying to keep them dry. It's not easy work. The good news is that his left lung seems to be doing really well. I'll take it! :)
15 comments:
Ben does look a little swollen....I notice it is his chin/neck area. I wouldn't have noticed it though, if you hadn't metioned it.
Hope the fungal thing clears up! Love and Hugs!!!
He is looking a little round in the face and a little sweaty too. Hope he is feeling well cause we are all excited to come visit really soon!!! Are you ready for US??
To me he looks swollen and off. He looks like he isn't feeling to well. I hope it is just the camera adding 10lbs, but I am not so sure. :(
OK, I've never met Ben...but as a stalker of his blog...he does look swollen. Poor Ben and poor mom...thinking of you!
Gosh, I can't really tell either... let's just call it a bit of extra fluff....
Becky he does look a little swollen. Reminds me of how Junior looked after being on prednisone for a long time(actually Junior still has the puffy cheeks).
Junior has a fungal issue on his head and the doc has him on some special shampoo. she told us we could use it on his skin also if we noticed any areas that looked like they needed it.
Big hugs, glad the lung is doing well.
Hi Becky--yes, he does look swollen. Poor little guy--doesn't he have enough to contend with? Glad his lung is doing good.
Yes, he does. PIctures are hard to tell, but to me, he does look puffy... and still mighty handsome too.
I do think his face looks a little puffy. I hope its nothing too bad!
Is he swelling any other areas, and I never would have guessed fungal???
Hi friend, glad to hear that his left lung is hanging tough. I hope his little hands start improving. Keep up the good work mama!
Hello! I am so happy that I stumbled across your blog today...I found the link on FCM. You have a beautiful family! Ben is such a fighter. These kiddos are tough aren't they? My daughter, Samantha, was diagnosed with Primary Autosommal Recessive Microcephaly abut 4 years ago now -- she'll be 4 in June. Though our situations are different, it's nice to come across another family who is in this small community. AND, I was so excited to when I realized that you are also LDS. Hello...how did I not notice everything on your side bar? Not sure. I have to say that the one thing, above all, that has given me strength has been my faith in our Heavenly Father's plan. And most definitely, I have a deeper appreciation for the resurrection. What a glorious day that will be. We have a family blog http://marcusandjenny.blogspot.com and email me some time if you want
jeanettegreen@gmail.com
I'm SO glad his lung is looking better! I think his little face is perfect. It is hard to tell if he's swollen, but it sure is cute and Chloe loves to blow kisses at it! Sorry about his poor little hands. I hope the nistatin helps - and soon! Wish I were closer to come give you both big HUGS!!! Love ya
He does look a bit puffy Becky....Looks like Jophies steroid "moon face". Is he on any? Wondering if the Nystatin worked? If not did they offer Diflucan? I'm sure he's been on it. It always works better for Jophie.
my HEART is swollen.
I love that boy!
xo
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