I'm worried about them. His fingers are so swollen that you can't see the normal knuckle wrinkles anymore. Look at the size of his thumb. He's 8 and it's comparable to mine. You can't pinch skin either. They are like swollen sausages. Tomorrow he has an appointment with his Urologist and he also has a scheduled ultrasound. Hopefully they will have some answers although I'm not holding my breath. Anybody have a guess as to why? And PLEASE do not tell me his wraps are too tight. They aren't.
Yesterday I had Ben off his vent for 6 hours. I'm sure his pulmonologist would have a fit but I did it anyway. I want him to not be so dependent during the nicer weather so we can get out more. I feel as if a lot of his increased vent needs were due to still being sick down in his lungs. They sound really good now. I might even ask for an x-ray just to make sure I haven't collapsed anything. If his left lung still looks good, I'll ask his doctor to start weaning some more vent settings.
Today we are off to church. It's the second week in a row. Looking forward to many more.