First picture is a little graphic.
(you've been warned)
This is Ben's diaper last week. It contains blood (mostly dried) and green drainage from his foley site. It was a LOT alarming to find. I took a picture to send to the doctor since we are 90 minutes away and it's not convenient to jump in the car and drive up there. He ordered a kidney and bladder ultrasound for today to make sure Ben doesn't have any bladder stones and to make sure the kidneys are functioning okay.
I snuck a picture in during his kidney ultrasound. It was LONG and BORING because there was a resident radiologist in training and Ben is a difficult kid to scan because his kidneys are tucked up high behind his ribcage.
Below is Ben with all the goop on his side...they kept changing the ultrasound probe from adult to pediatric and back again because they were having a hard time getting a good picture. Good thing he is so patient.
We spent a total of 9 hours on the road today. WHEW! Long day. His x-ray did not look so good. His left lung is showing collapse. I think his pulmonologist is going to be mad at me when she calls tomorrow with the results. (my PICU peeps gave me a sneak peek today) His PCP ordered some blood work to see if we can find the reason for his swelling. All looks normal. I'm happy but frustrated. I can't figure it out. Don't know if we ever will. The urologist says his bladder and kidneys look okay, not great, but not bad either. He's not sure why he's been having problems lately but wants us to continue what we are doing and he will be seeing us more frequently to monitor things.
This is what Ben looks like tonight. He still has a few bandages left that I need to take off from his blood work.. It's 85 degrees today so I stripped off his jeans to cool him down. I'm sure he is wiped because half way home the vent battery died. I wasn't anticipating being gone that long. 45 minutes he had no support. His sats stayed up but I know it wasn't helping that poor lung of his. He always gets tired when he's off the vent because he has to work much harder. I've been taking him off for short periods of time recently but I think I need to stop seeing how his x-ray looked. It makes me sad. I was really hoping to start weaning him way down now that he's feeling better.