It's a sad day when the record for longest PICU stay is broken. It's certainly not something we set out intending to do. 26 days is our longest stay ever. I know it pales in comparison to some children who spend months in the PICU...but it still feels LONG. Ben had more crazy eye movements today. They gave him a loading dose of phenobarb again and upped his normal doses of phenobarb and kepra. Hopefully that will keep them at bay. The other exciting or not so exciting news (depending on how you look at it) is that they are taking out his PIC line in the morning. 
7 comments:
Those pictures were so CUTE! I just love that boy!
Hooray for no PIC line- and hmmm, congrats for breaking the record- But not by MUCH longer, okay?
LOVE YOU
Congrats on record breaking events...now break a record once you get out--Longest time spent AWAY from the hospital! :)
The pictures are precious, Ben you are such a sweetie but no more record breaking for you young man, I want to hear that you are home.
Big hugs.
Not a great record to break Ben! Glad to hear that you should be going home soon though! Keep getting better buddy! HUGS!
Hoping the eye movements don't extend your stay. We were just discussing that last night, Hunter and I, and I was sure last year's Utah trip had it beat. Oh dear. Toooo long. Go home, Dorothy. Get out of Kansas!
Glad to hear that you are going home soon!! That is a long time to be there, No more of that record breaking stuff unless it is for staying out of the hospital!!
The pictures with his brother are precious!!
I'm so glad the PIC line is gone! That last picture is cute-those are some heavy eyelids. I hope the phenobarb helps keep the seizure stuff under control.
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