Wednesday, October 21, 2009

PICU Day 29

6 years ago - WOW! 6 years ago Ben was trached. This picture was taken right after he came back from his surgery. (cute as a button!) I remember this day SO clearly. It was a hard time. I was NOT mentally prepared for a trach. See that fresh scar on his belly? That was from his stomach wrap less than a month before his trach surgery. THAT surgery is what caused Ben to need his trach. I learned a very hard lesson in that medically when you fix one thing...inevitably something else will break. BUT, on a happier note, I haven't regretted the trach ever since. It's been our very needed friend.

So today was a little disheartening. Ben stopped breathing 3 different times. It wasn't as scary as it could have been because he is on the vent. The good thing is that the vent will kick in a backup rate if the patient isn't breathing for a specific amount of time. (his apnea alarm is set at 30 seconds) The disturbing part for me is that he was wide awake. He's had apnea before, (rarely) but usually when sleeping. We are trying to figure this all out before we head home...they even talked about keeping him one more night. We'll see how things look in the morning.

11 comments:

Junior said...

Such a sweet picture of your tiny little guy.
Prayers that you can figure out what is going on and get home.

April said...

Oh that picture just made me want to hug him. What a beautiful boy he is!
I'm so sorry things are hard right now... worrying about every breath is so tender... my heart is with you!

Smilin' sunshine said...

Scuh a cute picture!

Cindi said...

Becky, I check here several times a day for any news...I always pray for good things as the site is opening...and I pray each day for the road to be smoother for our little guy and his wonderful mom. I love you.

Jo Jo said...

Love that sweet picture! Look at those blonde highlights ;-) Hang in there. Sorry about the rude disconnect.

LL said...

Happy Tach-iversary! That picture is ADORABLE!

shirlgirl said...

Cute picture of him 6 years ago. Sorry about the incident today. Hope it clears up and he can come home. Love you.

ANewKindOfPerfect said...

Look at those adorable little cheeks! I just wanna smooch on him. I'm sorry he had a rough day today. I hope he does well tonite and goes home soon. That is a long stay already!

I wanted to tell you that I awarded you with the Lemonaid Award! Check out my blog for more information. :)

Emily B. said...

What a precious boy! I'm glad you were still at the hospital with plenty of people on hand to help when he stopped breathing. I'm praying the cause becomes apparent so you can feel okay bringing him home. Loves!

Jill said...

Hi Becky,
It has been great to reconnect with you. I am keeping Ben and your family in my daily prayers and devosions.
Love Jill

swagjackka said...

Wow, Ben Is Such An Inspiration! You Dont Know Me, But I Ran Into Your Blog And Ben Really Touched My Heart. I Have Osteogenisis Imperfecta, And Ben Really Taught Me You Can Always Have Fun At Life No Matter What! I Hope Everything Goes Smoothly For Him In The Days, Weeks, Months, And Years To Come!