Friday, October 23, 2009
Thursday, October 22, 2009
Wednesday, October 21, 2009
6 years ago - WOW! 6 years ago Ben was trached. This picture was taken right after he came back from his surgery. (cute as a button!) I remember this day SO clearly. It was a hard time. I was NOT mentally prepared for a trach. See that fresh scar on his belly? That was from his stomach wrap less than a month before his trach surgery. THAT surgery is what caused Ben to need his trach. I learned a very hard lesson in that medically when you fix one thing...inevitably something else will break. BUT, on a happier note, I haven't regretted the trach ever since. It's been our very needed friend.
So today was a little disheartening. Ben stopped breathing 3 different times. It wasn't as scary as it could have been because he is on the vent. The good thing is that the vent will kick in a backup rate if the patient isn't breathing for a specific amount of time. (his apnea alarm is set at 30 seconds) The disturbing part for me is that he was wide awake. He's had apnea before, (rarely) but usually when sleeping. We are trying to figure this all out before we head home...they even talked about keeping him one more night. We'll see how things look in the morning.
Tuesday, October 20, 2009
Sunday, October 18, 2009
Saturday, October 17, 2009
Friday, October 16, 2009
I've spent some of the day training.
They are still giving him trach trials.
(for short periods of time)
My plan at home is to take him places without it.
And when we're home, I'll put him back on.
Life will be less complicated that way.
And hopefully soon he'll be off it all together.
On a happier note,
Kaleb is visiting this weekend.
Brothers NEED to be together.
Wednesday, October 14, 2009
Tuesday, October 13, 2009
Saturday, October 10, 2009
Friday, October 9, 2009
Thursday, October 8, 2009
Wednesday, October 7, 2009
We've passed the two week mark. UGH. I am tired...no, more like exhausted. The first week in the hospital, your body runs on adrenaline. It's a wierd kind of energy. SOoooo not normal. Your mind and body sort of switches over to auto-pilot, pushing aside the emotional. You tell yourself, "I've done this (many times) before, I know how this works." After the first week comes and goes, you let down your guard, you start realizing that you might be here for awhile. It becomes tiring...in all sorts of ways. It is Phsyically, emotionally, and mentally draining. Back and forth, back and forth. More sitting, more waiting, more time in the PICU. It's a mind game. Now we are into week three. The dark circles under my eyes are manifesting themselves. I've been able to keep them at bay...until now. I'm anxious. Anxious to have my child be healthy again. Anxious to go home, to have my family be ALL together again. Just a few more days I keep telling myself...just a few more days.
He's almost done with his Pressure Support.
Monday, October 5, 2009
Sunday, October 4, 2009
Saturday, October 3, 2009
They have been working him HARD.
That's all he could handle.
Today he went 9 hours.
It's hard work breathing ALL by yourself.
Hooray for progress!!!