Today we start looking into a "life flight" to get Benjamin back to NH. I haven't spoken to the discharge planner yet so I'll have to update about that later. Yesterday was a really busy day for Benny, he's on the vent and so they had to change his trach to a 'cuffed' trach. This prevents air from leaking up and out his mouth/nose. They had put a smaller cuffed trach in early Sunday morning because it is difficult to get in. He still had a significant leak and so they had to change him to a bigger one. Thankfully they gave him some sedation for this as it can be quite painful. It took two different respiratory therapists to get it in. He also has been struggling with some fevers, high heart rates and high blood pressure. The blood pressure issue is new for us. This morning they are holding his feeds because his sodium level is borderline dangerously low. They are switching him over to his IV and administering some normal saline and some glucose to hopefully bring the number up. As soon as I know about the life flight info, I'll let you know.
7 comments:
Hopefully things will fall in line for you and that you can get that flight home. You must be so anxious because of Ben's situation and being so far away from home. The saving grace is that you do have your twin and his family there for you as well as Steve's family and your friends. You are both in our thoughts and prayers. We love you. Aunt Shirley and Uncle David
fly home to us, Benny!
I'm making a wish...
I hope today is a GOOD day! You'll have to go outside and scoop some sunshine into your pockets to bring back to the room! LOVE YOU
I talked to Steve in church yesterday. He says you have been happy with the care you are getting there at Primary Children's. I am glad. It's good to know that there are those aroud out there to care for you and Ben, but we want you back. Fly away home soon. Love you.
Still no word on the flight home. They need to hurry so you can get home. Julie said she was going to have lunch with you today. Hugs from Lacey and Jax
Ben misses his little nurse in NH. That will help with his blood pressure. (He's not use to the high altitude!)
Wow, Becky. I am so sorry. What can I do? Do you need anything? Sending hugs and prayers your way. Get better Benny so you and Mom can go home!
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